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Sunday, 19 August 2018

Helpful Links and today (so far)

I've just been adding some links to pages and organisations where you can find information on TMJ disorders and trigeminal neuralgia.

Today started bad, after I lay on my right side for a bit this morning before getting up. The right side is the worse side and I can usually only lie on that side for about a minute but I managed to position the pillow with a bit of a hollow and dozed off for a bit. The whole right sight of my face was in pain when I woke up! After painkillers and a nap (on my left and back!) I'm feeling a bit better but the nerve pain is firing a bit more often than usual.
Unfortunately, I suffer quite a few additional symptoms other than pain and limited jaw mobility. The nerve pain I've already mentioned. One of the other more debilitating issues is constant dizziness which is apparently due to the labyrinth inside the ear which controls balance being affected. Swelling around the temporal bone and muscle cause this as the labyrinth is situated very close to them.
I also have sound sensitivity (hyperacusis), a constant whooshing sound in my ear and a feeling that my ear is blocked or full of fluid (it isn't - I've had them checked, repeatedly!). I have pain and a feeling of pressure under my eyes which feels like sinusitis, but again it isn't.
I also get really bad headaches. I've had a constant low grade headache all the time since the disc displaced fully but I've gotten used to that. The headache can become much more severe though and even get all the way up to a migraine sometimes. The more severe headaches usually happen 4 or 5 days a week and thankfully the migraines less often.
From my discussions with fellow sufferers in support groups, it seems that most of these symptoms are common in severe cases. It's amazing how one little bit of disc tissue not doing it's job properly can cause so many issues and seemingly be very difficult to fix. Most doctors and dentists can't even agree on causes of the issues which then means there are no standard treatment protocols. I think there are lots of causes which adds to the difficulty of treatment. But I'll maybe leave all that for another day to mull over!
Take Care 😊

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